Our Beginning

In 1990, a small group of parents joined together for support, information sharing and also developed a baby package for parents of children with Down syndrome.

After realizing the need in the community to share this information, Up About Down was formed. Since then, the group has grown and we now share more than just a baby package – we share a wealth of experience and information – throughout our group and the community at large. We do our best to advocate for our children and educate the public along the way.

About down syndrome

Our Board

Suzanne Cyr

Suzanne Cyr

President

Aaron Rodrigues

Aaron Rodrigues

Director

Jamie Ruggaber

Jamie Ruggaber

Director

Dayna Pitre

Dayna Pitre

Director

Celesta Ponikowski

Celesta Ponikowski

Director

Jody Lowrie

Jody Lowrie

Secretary

Cindy Tracey

Cindy Tracey

Treasurer

Our Coordinators

Heather Cruwys & Lisa Homenick

Heather Cruwys & Lisa Homenick

Baby Package

Heather Cruwys & Lisa Homenick

Heather Cruwys & Lisa Homenick

0 - 5 Years Leaders

Dayna Pitre & Jamie Ruggaber

Dayna Pitre & Jamie Ruggaber

6 - 12 Years Leaders

Suzanne Cyr

Suzanne Cyr

Communication Liaison

Dolores Pacitti & Christina Gatti

Dolores Pacitti & Christina Gatti

13 - 21 Years Leaders

Dolores Pacitti & Christina Gatti

Dolores Pacitti & Christina Gatti

22+ Years Leaders

Suzanne Cyr

Suzanne Cyr

Contact Lists

Sheena Lane

Sheena Lane

Christmas Coordinator

Celesta Ponikowski

Celesta Ponikowski

Event Planner

Suzanne Cyr & Remily Livingstone

Suzanne Cyr & Remily Livingstone

Dances: Halloween & Valentine

Aaron Rodrigues & Celesta Ponikowski

Aaron Rodrigues & Celesta Ponikowski

Website

Cindy Nantais

Cindy Nantais

Alternate – Lidia D’Alimonte

SEAC Rep: Catholic

Joanna Conrad

Joanna Conrad

Alternate – Monica Gillis

SEAC Rep: Public